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In the meantime, is here for you. Read our guide to understanding PFIC. Visit our resource page to find other groups working to support families with PFIC. And hear from other people living with PFIC and their healthcare providers through our growing library of videos.

We understand that having a child with PFIC can be overwhelming. It can be equally challenging trying to explain the disorder. Our hope is that PFIC Voices can help. All of the information has been created just for you. To make sure everyone knows the real challenges and risks associated with PFIC. To help PFIC families share their stories. To provide tools that will help you advocate for yourself. And to support the PFIC community as a whole.

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Your friends at PFIC Voices