About PFIC Voices
We heard the voices of families with progressive familial intrahepatic cholestasis.
We created PFIC Voices to educate about the true burden of PFIC. And we’re dedicated to helping families better understand this devastating disease.
Few people know about the rare liver disease PFIC. We work with advocacy groups to bring clear, useful resources to PFIC caregivers and their families. We must join and raise our PFIC voices. Loud. Clear. And with purpose.
PFIC may begin in infancy or early childhood with jaundice, and progress to fibrosis and end-stage liver disease. If left untreated, end stage liver disease may result in death.1 Don’t wait. Talk to your doctor today.
Who created PFIC Voices?
Raise your PFIC voice
1. Empower yourself by learning about PFIC
Download your free guide to PFIC to learn more about this life-threatening pediatric liver disease. Know how to spot the debilitating symptoms. Find support through our resources page.
2. Advocate for those with PFIC
Whether your child suffers from PFIC or you know someone with the disease, every voice matters. Connect with PFIC families. Speak up. And speak loudly.
3. Stay informed. Subscribe to PFIC Voices
Receive updates on the latest resources and research as they become available.
Other rare liver diseases
Cholestatic liver diseases such as PFIC occur when bile can’t properly flow from the liver. If you or someone you know shows symptoms of PFIC, Alagille syndrome, or biliary atresia, see a liver specialist for a proper diagnosis and confirm the condition with genetic testing.
Alagille syndrome can impact the liver, heart, eyes, face, and skeleton. Symptoms can include severe itching, liver problems, bone fractures and poor growth.2 Learn more about Alagille syndrome.
Biliary atresia is a liver disease that appears in infancy. Symptoms may include yellowing of the skin (jaundice), clay-colored stools and enlarged liver.3 Learn more about biliary atresia.
- Mehl A, et al. World J Transplant 2016;6(2):278-290.
- Mitchell E et al. Clin Liver Dis. 2018;22(4):625-641.
- Siddiqui A et al. In: StatPearls [Internet]. Treasure Island (FL):StatPearls Publishing; 2021.